Meningitis - staphylococcal

As we move forward (although it feels like we are always moving backwards) Tim is battling what is called Staphylococcal Meningitis which is a Staph infection in the cerebral spinal fluid. This was caused by the brain surgery that he had status post 16 days ago. We are battling this day by day by monitoring his temperature, and white blood cell counts. He had started running a fever last Sunday and they did what is called a spinal tap to test the fluid. Although at first they said it was highly doubtful that the culture and bacteria was most likely in the brain, it was determined on Thursday that it was. He has been on Vancomycin and Cefa Drugs since Last sunday. Last night and the night prior he had no fever. This is a good sign that he is breaking the infection. The antibiotics caused a thrush in his mouth so they are giving him a medication to help him with that. Otherwise he has a healthy appetitie and a good sense of humor through all of this. It seems as though his mentality is back to normal although he does not seem to remember certain dates or months very well. If I was caught up in a hospital for a month I wouldn't start to remember the month either.
            I've been working and visiting him constantly making sure the nurses are doing their jobs. Not one doctor has come to visit from neurology.. the PA says its because they are waiting for the infection to go down and its just a waiting game. Transplant doctors have come in everyday to ensure us that his kidney is healthy. They had to cut back on the immunosuppressant drugs because he needs strength to battle this infection. This may take a lot longer because he is in immunocompromised with the Kidney. But as long as Tim is in Good spirits and comfortable he is able to be strong and patient while all of this is going on. I have started to calm down a bit. I was a wreck the first 3 weeks. But now I just am angry at this infection and ready to stand behind him and fight the battle with him. I ensure the nurses are doing their job. Checking to make sure he needs to use the bathroom, helping him with getting up and down with physical therapy.. those things that some nurses tend to neglect with Tim. He can tell me who does what and who neglects him. Its all written down in a book that I will present to the medical director and other people once things have subsided a bit. People look at me like I am stupid being in the hosptial room all the time but it is all for a reason. The reason is I love my Tim and the second reason is everyone that has been neglectful since the beginning of this will have a talking to by several people. What has happened to Tim this past year has been a miracle and a disaster all at the same time. Although I think things happen for a reason and am very positive on the events leading to this.. it is because of my faith in God I have this output. But for someone that is fascinated by medical and has been persuing a job in the medical field I have another opinion on all of this. I am never going to let something like this every happen to someone else. I have to be an advocate to every single person in that hospital who asked for something or had a sign and symptom that was ignored. This will turn out all right for Tim.. I have my faith that it will, but this may not be a miracle case for everyone and how many times does this happen to people? I am ready to fight a battle greater than anything I have ever done and I am determined to have justice for the people who do not have knowledge of medical or someone in their family that does. People put a lot of faith into doctors and medical staff to be their care givers and to do the right thing. it's time they realize how truly important that really is to the livelyhood of our people.