Friday, August 10, 2012
I'm a tumor, I'm a tumor, I'm a tumor
I think that yesterday may have been the scariest and most intense day of my entire life... When someone goes in for surgery they have their nervousness and their doubts but they know that if something happens they are under and would never no. I truly believe that the people who have to sit in the waiting room next to their loved ones and family members have it the worst. I have to tell you, Tim's parents and relatives are a tough group of people. They were so positive and open minded and very optimisstic about this sugery. Me on the other hand.. was tired, hungry, drained, and freaked out beyong anyone could describe. I sat in that chair the morning of his surgery just staring at him while he slept and watching the clock for when the nurse was going to tell us that transport was going to be here shortly to take him down for surgery. I had a knot in my stomach and my heart was beating out of my chest. First they said noon, then they said one, then Three o'clock so when noon hit and transport showed up at the door I was so scared and sad because I thought I would have three more hours to just sit there and watch him sleep. I walked behind the bed as they transported him down to the operating room at the Smilow Cancer Center. They have a 16million dollar cancer brain tumor operating room designated just for people with brain tumors. the doctor said he absolutly did not need this big fancy schmancy room but that it was there and we might as well utilize it.
His surgery began at 12:53... and I figured it would take an hour to shave the back of his head, and put him under anisthesea. and then 5 hours to perform the surgery. That was the longest five hours of my life. I paced back and forth that room, walked to the bathroom, walked past the secretary... she talked to me and I told her the entire story (poor lady) and at about 4 hours in the buzzer rang...
We waited for about 45 minutes in the consult room. I couldnt handle it.. I was like something is wrong, somethings not right.. this is not good, I was crying and not breathing right and the secretary told me.. listen. I can see what they are doing.. they update my screen.. operation ended at blah blah blah.. they stiched him up at this time.. and they are bandaging him up now.. meaning... hes good.. nothing bad happened. I started balling my eyes out.
The doctor came in and said.. Jackie (SMILING) I have nothing bad to say. I got up and hugged him for like 10 minutes (poor doctor)... he said that he was alert and talking.. and that hes acting like a drunken trucker right now but that was to be expected for a couple weeks after the surgery because of the sensors where the tumor was and they had to play around in there to get everything out. Then he said he wanted to talk to me about some crazy stuff.. He said.. I am beside myself.. I don't know how Tim has been able to function with this thing.. its a tumor only found in children.. I have never or anyone has ever seen this in an adult.. its completely cancer free.. just one of those tumors small children get and they take it out and make sure its completely outta there and they move on with their life. Its the best kind of tumor to find because it means no chemo, no radiation, and quick recovery. He then went on to tell me that he couldnt explain why they overlooked this a year ago but that it was a very good thing that whoever made that mistake did because he would have never been able to have a kidney transplant with that thing noted in his brain... it would have kicked him off of the eligiblity list for a very long time, and to top it off, if he didnt have a kidney transplant the doctors would have deemed him too sick to have the tumor taken out of his brain..
He said that today has been quite the pheonimon of a day and that he is safe to say that there is someone of a higher power watching over every moment of this kids life. I was floored.
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