I can't keep track of the days anymore... 26 days in the hospital... 27? All I know is that it's way to long to be cooped up in a hospital room with hospital food, beeping, and constant strangers wanting to test more and more things. They did a spinal tap about a week ago and yesterday told us all the cultures were negative. Infectious disease came in and spoke with Tim and said they wanted to take a look at his case to see if there was somthing that neuroscience was missing.. Thanks for coming 20 days later than when he was symptamatic.
Better late than never but still... a little frustrating to hear he has menengitis over and over again instead of telling me that the vanco was working for him. They are going to do a repeat Spinal Tap to test the fluid one more time because they aren't convinced that the bacteria is completely gone. He is still having fevers at certain times of the day and they don't know where or why that is happening. It may be Tim's normal body routine or it may be something they missed... They are going to keep testing him for a few more days and I think thats the best option... he is in a good place and I'd rather them search for something than forget about it and something happens at home or rehab.
Rehab is the next step. We are thinking Gaylord Hospital in Wallingford. This will help him become more steady on his feet. He still has paralization in his right eye. The surgeon thinks it will resolve it is just taking a lot time.. Who knows. I thank God that he has his memory and his sense of humor back and if his vision takes a while to get going again so be it. Things outside of the hospital have been rough and it hasn't been easy for any of us. We are all dealing with this different ways and it is very difficult to keep everything together. I feel lost.