Well it was confirmed that Tim's transplant commitee does not want to do the transplant until he is in 6 months of Lupus remission. He did not have signs of Lupus since before November so they are going by the date of his last chemo treatment and will do the Transplant then. It was kind of hard news to take in because when we were in the hospital it was pretty much told to us that they were going to do the Transplant this week, but I am glad they have a plan of action and I trust their judgement. So he went for two minor surgeries last week... one was a port through his chest so he would be able to do hemodialysis and one port through his stomach so we can do dialysis through the peritoneal cavity at home. Hemo was a little rough at first for Tim... he was getting really bad headaches afterwards and he was exhausted. The process took about 3 hours each day and he had it 4 days in a row. When we got home we were set up with Davita in Hamden and they are having us go Monday, Wednesdays and Fridays for 3 weeks in house to get treatment. On Monday there was a little bit of a disaster with the Dialysis... Tim is not a regular Kidney Failure patient. He is still producing Urine and passing Toxens through his body, and he also does not gain any fluid weight so there is no need to take fluid out of his body when they perform Dialysis on him (they filter the blood and usually take excess fluid out of the body that would normally pass in urine in most patients) At the hospital they were taking less than a cup of fluid out of his body a day and Monday they took about 3 liters of fluid, He began to crap up in his chest, his legs, and his hands and his blood pressure went from 140/90 to 90/60 in a matter of minutes. He began to get stomach sick and vomitted violently in the center. They rushed to him and put 2 liters of fluid back into his body and he slowly began to feel better.. I was not happy at this point and within minutes called our doctor and got him on the phone right away. He did not seem very happy at them at all and called over to them to make sure this never happened again. He was very upset that Tim had a shitty first day of dialysis after his discharge of the hospital, but Tim felt better within an hour or so and understood it was a mistake. It took me a little bit longer to calm down.
Today we started our peritoneal dialysis training and went to the Davita center in New Haven which is located next to the yale school of nursing. They were very friendly and they apologized for Hamden Davita's actions for the previous day. We had one on one training with a nurse who explained home dialysis and how it could be done by a machine at night while he sleeps or manually without electricity throughout the day. Tim felt great today and I havent seen him this energenic or alive in months. Today was a great day and I have faith that this is going to get better and better.
Tim's uncle was cleared medically to go ahead with the transplant so we are just waiting the six months and then Tim will have his surgery, a fantastic birthday present for Tim. We are planning our wedding to be 2013 because we want him to be fully healed and doing well with the transplant before we walk down the isle. 2012 is too soon for our wedding anyway and we know that another year will go by very fast.
-Jackie
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