Monday, October 10, 2011
How could things change so much after a Diagnosis?
Haven't written much on here lately. Mostly because we have just been adjusting to a new lifestyle that none of us ever thought would happen. 12 Doctors appointments a month, 12 different types of medicine, Chemo therapy once a month.. food and water restrictions it is just a huge change. On a good note Tim's Kidney function seemed to improve since we saw the nephrologist last and that rarely happens when there is scar tissue around an organ. The Chemo went like a normal chemo treatment went... 8 hours at Smillow Cancer Hospital.. pumped with fluid Tim shouldnt have and waiting anxiously for the bag of medicine to get mixed together. Followed by three days of not knowing whether he is sick to his stomach or hungry, hot or cold.. and feeling weak to the knees. After that he gradually has gotten back to normal but complications always find its way to show face. The antibiotics caused a new reaction and so it was stopped plus a few other glitches here and there with his blood pressure, but everything seems to be under control today. I just don't understand how all of this can come out after a diagnosis... His legs were swollen a TINY bit before he was hospitalized and now they are always swollen, and he was drinking a LOT more water than a liter... They tell us he has Lupus and to watch for skin irritation and all of a sudden he starts getting skin irritation... It is just akward and still feels funny about this whole thing. I don't want to say the wrong thing but I don't think their diagnosis is 100% accurate and I haven't since he was admitted. I continue to pray every single day for Tim and ask for continued strengeth and support. I ask for Blessing to each and every member of the associated Teams working with Tim which is over 150 doctors as well as any nurse staff and staff helping with his treatment. I thank God for the opportunity to work at night and have the freedom during the day to be there for Tim with his specialist appointments and the support of his family as well as mine who have asked and constantly been there by our side while times have been tough.
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